patient experience

Showing 15 posts of 22 posts found.

Anavex Life Sciences and Partex NV Group announce AI-based strategic partnership to enhance patient experience

June 28, 2023
Research and Development AI, Anavex Life Sciences, Partex NV Group, Pharmacy, patient experience

US-based clinical-stage biopharmaceutical company Anavex Life Sciences and German digital pharma platform Partex NV Group have announced a strategic partnership …

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Patient Experience: Living with Timothy syndrome

October 26, 2020
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Timoty syndrome, feature, patient experience, rare disease

Thirteen-year-old Calvin Muir lives with the ultra-rare genetic condition Timothy syndrome. Like many parents of rare disease patients, his mother …

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Living with multiple ‘invisible’ conditions

May 26, 2020
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing feature, patient experience, rare disease

Darren Taylor lives with a range of conditions including Dercum’s disease, cystic fibrosis, fibromyalgia with chronic fatigue, and Tietze syndrome, …

Patient Experience: Living with type 1 diabetes

April 14, 2020
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Interview, diabetes, feature, patient experience

23-year-old US student Madelyn Lazra recently graduated with a BA in Business Law and certification in International Business, and is …

Patient Experience: Living with multiple rare diseases

February 17, 2020
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing feature, patient experience, pharma, rare disease

Carole Scrafton discusses her experience living with Ehlers-Danlos syndrome alongside other rare conditions that have manifested throughout her life, and …

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Patient experience: Living with desmoid fibromatosis

December 4, 2019
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing desmoid fibrosis, feature, patient experience, pharma, rare disease

Lisa Pascoe lives with a rare, benign desmoid tumour in her abdomen. She opens up to Pharmafocus on her diagnosis …

Living with acute myeloid leukaemia

September 23, 2019
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing acute myeloid leukaemia, feature, patient experience, pharma

Steve Rothberg was blindsided by an AML diagnosis that progressed rapidly with little warning. Ten years later, he discusses his …

vaila_morrison

Living with a rare genetic neurodevelopmental disorder

August 5, 2019
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing KAT6A, feature, patient experience, pharma, rare disease

Vaila Morrison’s daughter Eilidh was born with the ultra-rare condition KAT6A. As a designer and architect by profession, Vaila told …

Living with mal de debarquement syndrome

July 1, 2019
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing patient experience, pharma, rare disease

Polly Moyer reflects on her experiences living with the rare condition mal de debarquement syndrome, and discusses how connecting with …

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Living with Scimitar syndrome

May 28, 2019
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Scimitar syndrome, patient experience, pharma

Katy Baker has lived her entire life with the rare congenital heart defect Scimitar syndrome. She reflects on the system …

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Living with a rare chromosome disorder

April 11, 2019
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Inv Dup Del 8p, feature, patient experience, pharma

Rebecca Pender’s daughter Hannah lives with the ultra-rare condition Inv Dup Del 8p, a genetic arrangement that affects just 80 …

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Patient Experience: Living with two rare diseases

March 18, 2019
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Wyburn-Mason Syndrome, acromegaly, feature, patient experience, pharma, rare disease

Dan Jeffries was diagnosed with the ultra-rare condition Wyburn-Mason syndrome at a young age, leaving him blind in one eye. …

Living with melanoma after surgery

February 25, 2019
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Cancer, melanoma, patient experience, pharma

Dr Elizabeth Walmsley was left lost when she received her melanoma diagnosis. Thankfully, through perseverance and the advice of friends …

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Living with Alström syndrome

January 14, 2019
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Alström syndrome, patient experience, pharma, rare disease

Kay Parkinson lived the tragedy of seeing both of her children born with an ultra-rare condition, and the elusiveness of …

Living with Langerhans Cell Histiocytosis

October 11, 2018
Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Langerhans Cell Histiocytosis, feature. pharma, patient experience, rare diseae

Affected as a young child by a rare disease which targets just one in 200,000 and led to neurodegeneration throughout …

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