patient experience
Inizio Engage and Nye Health form a strategic alliance to enhance patient support and outcomesÂ
August 1, 2024Research and Development Contraception, Inizio Engage, NHS, Nye Health, alliance, data, patient data, patient experience, support
 Nye Health’s digital platform will be coupled with the patient support experience available at Inizio Engage. The integrated approach will …
Anavex Life Sciences and Partex NV Group announce AI-based strategic partnership to enhance patient experience
June 28, 2023Research and Development AI, Anavex Life Sciences, Partex NV Group, Pharmacy, patient experience
US-based clinical-stage biopharmaceutical company Anavex Life Sciences and German digital pharma platform Partex NV Group have announced a strategic partnership …
Patient Experience: Living with Timothy syndrome
October 26, 2020Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Timoty syndrome, feature, patient experience, rare disease
Thirteen-year-old Calvin Muir lives with the ultra-rare genetic condition Timothy syndrome. Like many parents of rare disease patients, his mother …
Living with multiple ‘invisible’ conditions
May 26, 2020Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing feature, patient experience, rare disease
Darren Taylor lives with a range of conditions including Dercum’s disease, cystic fibrosis, fibromyalgia with chronic fatigue, and Tietze syndrome, …
Patient Experience: Living with type 1 diabetes
April 14, 2020Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Interview, diabetes, feature, patient experience
23-year-old US student Madelyn Lazra recently graduated with a BA in Business Law and certification in International Business, and is …
Patient Experience: Living with multiple rare diseases
February 17, 2020Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing feature, patient experience, pharma, rare disease
Carole Scrafton discusses her experience living with Ehlers-Danlos syndrome alongside other rare conditions that have manifested throughout her life, and …
Patient experience: Living with desmoid fibromatosis
December 4, 2019Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing desmoid fibrosis, feature, patient experience, pharma, rare disease
Lisa Pascoe lives with a rare, benign desmoid tumour in her abdomen. She opens up to Pharmafocus on her diagnosis …
Living with acute myeloid leukaemia
September 23, 2019Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing acute myeloid leukaemia, feature, patient experience, pharma
Steve Rothberg was blindsided by an AML diagnosis that progressed rapidly with little warning. Ten years later, he discusses his …
Living with a rare genetic neurodevelopmental disorder
August 5, 2019Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing KAT6A, feature, patient experience, pharma, rare disease
Vaila Morrison’s daughter Eilidh was born with the ultra-rare condition KAT6A. As a designer and architect by profession, Vaila told …
Living with mal de debarquement syndrome
July 1, 2019Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing patient experience, pharma, rare disease
Polly Moyer reflects on her experiences living with the rare condition mal de debarquement syndrome, and discusses how connecting with …
Living with Scimitar syndrome
May 28, 2019Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Scimitar syndrome, patient experience, pharma
Katy Baker has lived her entire life with the rare congenital heart defect Scimitar syndrome. She reflects on the system …
Living with a rare chromosome disorder
April 11, 2019Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Inv Dup Del 8p, feature, patient experience, pharma
Rebecca Pender’s daughter Hannah lives with the ultra-rare condition Inv Dup Del 8p, a genetic arrangement that affects just 80 …
Patient Experience: Living with two rare diseases
March 18, 2019Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Wyburn-Mason Syndrome, acromegaly, feature, patient experience, pharma, rare disease
Dan Jeffries was diagnosed with the ultra-rare condition Wyburn-Mason syndrome at a young age, leaving him blind in one eye. …
Living with melanoma after surgery
February 25, 2019Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Cancer, melanoma, patient experience, pharma
Dr Elizabeth Walmsley was left lost when she received her melanoma diagnosis. Thankfully, through perseverance and the advice of friends …
Living with Alström syndrome
January 14, 2019Business Services, Manufacturing and Production, Medical Communications, Research and Development, Sales and Marketing Alström syndrome, patient experience, pharma, rare disease
Kay Parkinson lived the tragedy of seeing both of her children born with an ultra-rare condition, and the elusiveness of …
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