UCB launches ‘Parkinson’s Well-Being Map’
pharmafile | April 13, 2012 | News story | Medical Communications | Parkinson's disease, UCB
UCB has launched a new visual tool to help people with Parkinson’s Disease to discuss their health and symptoms with their care teams.
A new video ‘Living with Parkinson’s Disease: Insights and Inspirations’ has also been unveiled, giving a voice to people with Parkinson’s on the effects of the condition on their lives.
The Parkinson’s Well-Being Map was developed by UCB in consultation with people with the condition and in partnership with the European Parkinson’s Disease Association (EPDA), the Cure Parkinson’s Trust and the Spanish Federation of Parkinson’s Disease.
UCB’s interest in the area centres on its drug Neupro (rotigotine), a patch for Parkinson’s disease and restless legs syndrome.
“The Parkinson’s Well-Being Map translates a complex issue into an ‘at-a-glance’ summary of symptoms of an individual’s Parkinson’s,” says Knut-Johan Onarheim, President of the EPDA.
“By including both movement related and underlying symptoms, it can help people talk to their healthcare team about all aspects of Parkinson’s including symptoms such as sleep disturbances and mood changes, which they may not have realised could be part of their Parkinson’s,”
Designed to be simple and easy to use, the Parkinson’s Well-Being Map is intended to help people with Parkinson’s monitor and record their symptoms over time, as well as summarise their health ahead of a consultation with their healthcare team. The Map is already available in paper format in some countries, and will be made available in further countries this year.
The Parkinson’s Well-Being Map builds on ‘Today I will…’ an ongoing initiative from UCB which encourages people affected by Parkinson’s to make motivational pledges to inspire and support others.
‘Today I will…’ pledges received to date include:
• “Today I will… take inspiration from other pledges, then hopefully realise I’m not alone. I thank you all.” • “Today I will… totally forget my Parkinson’s when walking in the sun, the energy comes back, the winter time is over and then I really enjoy my life!” • “Today I will… ask my patient how they are living rather than how they are moving.”
“Parkinson’s Disease is a complicated condition which can have a significant impact on how people live their lives. At UCB we are committed to supporting people with Parkinson’s by developing resources that help them to communicate their full range of symptoms to their healthcare teams and connect with each other for motivation and inspiration,” said Lode Dewulf, MD, Vice President, Global Medical Affairs, UCB.
The launches were timed to coincide with World Parkinson’s Disease Day on 11 April. Click here to view the ‘Living with Parkinson’s Disease: Insights and Inspirations’
To learn more about UCB’s educational initiatives to inspire people with Parkinson’s including the Parkinson’s Well-Being Map and ‘Today I will…’ visit www.parkinsons-voices.eu.
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