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China to establish national rare disease network

Published on 19/02/19 at 10:26am

China is set to establish a national collaborative network of hospitals for rare disease diagnosis and treatment to promote early detection and effective treatment of rare diseases.

The initiative, announced by the National Health Commission, will see 324 hospitals, chosen for their capacity and experience in treating patients with rare disease, participate in the network.

The network will facilitate the timely transfer of difficult and complicated cases between hospitals and the allocation of quality medical resources for patients.

Meanwhile hospitals will be urged to further train doctors and medical workers in dealing with rare diseases with a focus on improving doctor’s abilities to make diagnoses.    

The decision comes after the Chinese government cut VAT on 21 drugs for rare diseases causing stocks in Chinese pharmaceutical companies to soar.

Louis Goss

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